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\n<\/p><\/div>"}. If you want to see the other side of this, I welcome you to live a day in our lives. Well, happy judging autism super mom. Let the woman tell her story. Older autistic children may enjoy setting up their toys in scenes. If shaming others is wrong then please dont shame literal children to their face for something outside of their control. Id go on some more but My son decided to smear his poop all over the bathroom wall and floor, so I gotta go clean that up. Or maybe stop telling other parents what to do Thank you. You have no clue what it is too realize, and YES grieve, because your child will never have a comfortable existence, and may never even go to school much less graduate. Life will chew you up and spit you out and the more issues you personally have the harder it will become to handle life at its worst. Her concerns are real. So many parents of autistic children have liked, commented on, and shared it. . And yes it is a burden. I learned more about her. Knowing your child will need 24/7 care the rest of their life, and knowing you will die first, and who then will love them as much and take as good of care as the deserve. That is the reality of it. How they hope and pray for a cure? They talk about how their disabled children are burdens on them and make their life so much harder. And there is absolutely nothing wrong with saying so. They have a dogpile of kids and suddenly they have the moral authority to trash not only parents of typical kids but as proven here, parents of disabled kids. And before anyone says but you cant possibly understand because you and your child are high functioning which is totally different.. Period. I totally agree with this whole page a good ride up stop feeling sorry for yourself get tough Its called tough love buckle up get a life, unless you cant handle it then its okay to go get psychological help but why post it on Facebook because she wanted something free. Life can be stressful for autistic people, which can result in some behavior that is difficult for parents and caregivers to respond to. . I find it interesting that the first thing this article does is shame a mom for her blog. The stim may be very important to them. His inability to hold a conversation, to flirt with girls his age, to be a peer rather than a child to girls he has crushes on, to his cousins his age it is heartbreaking. Thats private information, and no parent to a NT child would ever do that. Make it clear that you care about what's bothering them, even if you don't know what it is. People with autism have a number of legal rights and protections. Parents complain about all their kids at any given time, even the ones who dont have issues. I dont think so. (My sons therapy just from age 2 to 6 was not reimbursed by insurance and cost us the equivalent of a house or a college education at Harvard!). Wow, Kaylene, such a great essay! While I agree that there is a time and place for everything, to say that a parent has no right to express frustration about their child is bogus. I wonder why is this so easy for other moms? You are not wrong, but you said it WRONG. Im afraid Ill hit someone while being distracted by trying to dodge blows. You probably want to deny your parents the right to complain about you, but you project it on us. But now I am. No one is. Everyone has bad days, but this post outlines why to stop complaining about your autistic children and what you can do instead!). Try to be consistent as best as you can. I was badly bullied and excluded, did not know the difference between someone coming to help me or bully me, and had meltdowns. This may occur in children with autism along with many other symptoms that point to autism . Having to cook special foods because your child will only eat a few types of foods or worst case, feeding tubes because they wont eat at all,and they will starve themselves. My heart aches for him. You are not the autistic person mothers grieve for anyway What an horrendous person you are, I bet youre an abusive parent. Its so interesting to me that the only people who complain about functioning labels are either high functioning themselves or have a high functioning child. How dare you make out like what she is saying is abusive. Autism can seriously suck. Last resort. The severe learning disability is the issue. My husband disappeared into his work, and I had another child who needed me as well. This can help you learn more about their sensitivities. I am the mother of a severely autistic child and this life sucks I belong to a support group where we share it all. Any mother to says i dont think like that, dont think is being truthful,fear and worry come from Love and caring. Its just not okay at all. There are a few incorrect assumptions I want to point out from this comment and also from other posters in this thread. You say your son will outlive you, and I have to break it to you: that might not be realistic worry for your son. He still loves Elmo. She cries in her car, on video for hundreds of thousands of people to see, because her son is autistic and that makes her life hard. Imagine having something important to say, but being unable to form words or coherent sentences. It can be overwhelming. They may use abusive tactics, such as holding down your child's hands, ignoring feelings of discomfort or fear, ignoring the right to say no, withholding food, or even using electric shocks. I do not speak for all mothers or autistic individuals, but only for myself. Make sure your child knows that you love them, autism and all. Just as your parents supported you. . There are tons of autistic groups where non-autistic parents are not allowed and the the kids will finally feel accepted. If you agree with this and you want a safe space online where you can learn and grow as an autism advocate, click here to tell me a bit about your situation and join the Embracing Autism Facebook Group! Being non-speaking or intellectually disabled (those are VERY different things, by the way) doesnt negate that persons basic right to privacy, dignity, and respect. We all know that from the moment of birth when crying means hunger, fear, loneliness. A burden I have to carry because they are my children and I love them, so I am sacrificing my time, my life, my goals, and my hopes so they can function. I don't feel like have an identity anymore. See if your child can handle eating gummy vitamins if their diet is very limited. You are not alone in not being believed. Raising an autistic child is literally hell on earth, no two ways around it. The problem here isnt the teachers, most of whom are going beyond duty for the children. You dont want to believe the severely autistic even exist let alone cause their parents heartbreak. This isnt right, but parents like us are so freaking exhausted just trying to survive, we dont have the strength to demand fair services for our children. My God are you OK? Im not complaining about this; Im broken.BROKEN. Is she not allowed to have one? Dont blast it all over a public media space. Recognize the difference between a meltdown and a tantrum. It is exhausting living with a full grown man with the IQ of a toddler. Like, there is an out? The legacy of nazy collaborator Hans Asperger? Yes, vent, complain etc but not on the internet to strangers. Selfrighteous fat piece of shit, how dare you. American Psychological Association, 1999. Im already a member of the FB group and I really value you. Forces to quit jobs to stay home with the severe individual, living in near poverty, and always fighting to get your child disability services. Autism news, information and support. 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